Doc talks about it, JP adds substance to it, now I want to give a Lifekludger view. Shift the context to a disability perspective.

While Doc and co’s thoughts are around the Net Neutrality debate, it’s the humanity aspects outlined that perked my interest.

JP says eloquently:

The edge is about people. Control has passed to individuals.

Now I know about the edge, I live there. On the edge, the fringe of society. Maybe not as near as some, maybe further out than others. As a general statement, most people living with disability live there, as do other marginalised groups of individuals.

Marginalisation occurs when something on the edge is unconnected.

This can be seen in the area of housing and disability. Institutions versus community living. It is simply human decentralisation. Where rather than data moved out and siloed, people are. People living in the community without the freedom of connection to the ‘network’ of other human beings living around them become cut off, isolated – marginalised. What should be a clear path is blocked by barriers.

Institutionalisation is not a state of place, but a state of disconnection.

On the fringe you need to be adaptable. My whole life is one of intense adaption – a life-kludge.

That’s essentially why Lifekludger exists, to remove barriers to connection – to connect around the idea that technology is a great way to get people living with disability, even though they may be living on the edge, that they might be connected and not marginalised.

Related posts:

  1. Isolation kills
  2. Shirky says Lifekludger needs a clear, shared goal – what says you?
  3. Lifekludger Wiki